Title: Lived experiences of primary care providers (PCPs) of Alzheimer’s disease and related dementia (ADRD) patients in Baguio City
Abstract:
The increasing prevalence of Alzheimer's Disease and Related Dementia (ADRD) worldwide has placed a significant strain on healthcare systems. Due to limited access to formal healthcare services, families often rely on Primary Care Providers (PCPs) for support. PCPs refer to family members who provide essential care for patients with ADRD, assuming responsibilities beyond basic assistance and daily tasks. As the population ages, the role of family caregivers becomes increasingly vital, necessitating targeted support strategies. A comprehensive exploration of this dynamic contributes valuable insights to the existing body of knowledge, emphasizing the importance of recognizing PCPs as integral partners in delivering effective, patient-centered, and high-quality nursing care. Currently, there is a lack of local analyses examining the wellness, challenges, and difficulties faced by PCPs. This study utilized a phenomenological qualitative research approach, employing semi-structured interview guide questions. Data was collected through Key Informant Interviews (KII) with PCPs of ADRD patients. Findings revealed that PCPs encountered both positive and negative experiences, including challenges, significant lifestyle transformations, tests of character, and moments of reflection and realization. The findings highlight the need to acknowledge and empower PCPs as key partners in dementia care, ultimately improving the quality of life for patients with ADRD and their families. Furthermore, the study underscores an urgent need for systemic support through caregiver education, accessible healthcare services, and mental health interventions to sustain the well-being of both caregivers and patients.
